The Association's purpose is to inform and educate the public about hemophilia and other inherited bleeding disorders, and to provide educational and support services for Alaskans living with hemophilia and other inherited bleeding disorders.
How Pick.Click.Give. makes a difference
Hemophilia is the most expensive chronic disorder in the world to treat. 50 years ago a hemophiliac had a life expectancy of 12 to 15 years old. Today a hemophiliac has a near normal life expectancy and a good quality of life as long as they can sustain treatment. Progress in the treatment of hemophilia keeps improving. Every few years better and better treatment is discovered. Longer lasting treatment or a cure seems possible.
Hemophilia research has not only help hemophiliacs but that research has also been applicable to many other disorders.
The Alaska Hemophilia Association sponsors an annual camp for children whom learn vital skills in how to self medicate, alleviate potential injuries and learn to be a contributing member of society. The Association also provides education and assistance to people with bleeding disorders and their families.
Although hemophilia is quite rare, it is estimated that up to 2% of the population has some sort of bleeding disorder. Your contribution helps all bleeding disorders and furthers the benefits of bleeding disorder research to help with other medical conditions.